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What national organizations exist to help caregivers?
- The National Alliance for Caregiving (NAC): The Alliance is a not-for-profit coalition of national organizations focused on family caregiving. The web site has searchable databases of articles and guides for caregivers.
- Caregiver Action Network (CAN): CAN provides information and advocacy updates for caregivers, including a home healthcare primer and advice for communicating with healthcare professionals.
- National Family Caregiver Support Program (NFCSP): NFCSP is a government program that funds local agencies to provide information and assistance to caregivers caring for people aged 60 and over. Most of the local programs are overseen by Area Agencies on Aging (AAA). To find your local AAA, click on the Eldercare Locator link in the LINKS box.
- AARP: The national organization’s web site provides a range of resources for the elderly and for caregivers.
- Family Caregiver Alliance (FCA): FCA is a not-for-profit organization that offers programs at national, state and local levels to support and sustain caregivers. The group’s web site provides hundreds of articles with advice for caregivers. It also includes good disease-specific information.
- The Family Caregiver Program: Run by the Department of Pain Medicine and Palliative Care of Beth Israel Medical Center, the program provides counseling and support for caregivers, offers referrals to community resources, and conducts research and education initiatives. The program’s web site “NetofCare.org” offers online support, education and information on daily aspects of caregiving.
- Well Spouse Association: This national, not-for-profit membership organization gives support to wives, husbands, and partners of people with chronic illnesses and/or disabilities. Its web site hosts online caregiver chat forums and lists face-to-face support groups around the country.
- Caregiver Support Services: This Nebraska-based organization provides information and support for caregivers, and has listings for professional caregiving training programs. The group’s web site features an interactive stress test.
- National Caregivers Library: Hosted by Family Care America, this online resource has hundreds of articles for caregivers.
- Next Step in Care: NextStepInCare.org provides information and advice to help family caregivers and health care providers plan safe and smooth transitions for patients. All materials for family caregivers are available in English, Spanish, Russian, and traditional Chinese.
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